Yesterday, while at the Hasidic medical center with my son, I picked up a magazine with a black cover and the title “Tzim Gezint“. It was free for patients to take, so I took it — of course! This was the formal, official, Hasidic publication on vaccines, and I’ve wanted to understand the measles outbreak ever since it has been all over the news. I wrote earlier this week that I’d check back in a year or two with more facts about what caused the measles epidemic. So guess what – it was kvitzes haderech; the Hasidic concept of magical speedy travel. I think I get it now.

This black mag was published by the Hudson Valley Health Coalition, a collaboration between Kiryas Joel health practitioners and the Orange County Department of Health. Kiryas Joel is in the New York suburbs, a bit far from the comparatively modern Borough Park, but also, it’s my home town. It’s where I lived the first twenty five years of my life. In fact, here’s a tangential piece of nostalgia:

Dr. Alan Werzberger, a pediatrician who is one of the primary voices in the publication, was my pediatrician all through my childhood. He started to practice the year I was born. My memories of him are mostly of the long, endless wait times in his waiting room. It could take five hours to see him. I never felt like I knew him at all, the doctor who rushed in and out. But when my son Seth was born, after I had a stillborn a year earlier, he showed up in my hospital room in Columbia and gave Seth his first check-up. I remember how surprised

I was when Dr. Werzberger walked in. I had been writing on the laptop, and he said “A woman from Kiryas Joel with a laptop. I’ve never seen that before.” And I acted so guilty, he mumbled something to the effect that he didn’t mean anything by it.

Anyway. There – Grandpa Simpson and I and long side-stories…

The book had some really interested insights into the issue with vaccines. It was an educational component of the Hasidic community’s efforts, and not surprisingly, the official stance is very pro-vaccine. But I also got to understand a little bit about how the secular anti-vaccine trends is affecting this demographic.

Here are my Cliff’s Notes:

1. First, the numbers: The heads of both major schools in Kiryas Joel wrote about what they see with regards to vaccines in schools. UTA reports that 2% of the students have religious exemptions, While V’Yoel Moshe says the school has 1,000 families and not one letter of exemption on file, with 95-98% compliance.

2. Religious exemptions doesn’t mean people are not vaccinating for religious reasons. Kornbluh from the UTA says that “A lot of parents are worried about confidentially They don’t want the community to be aware of their child’s illness, so they’ll bring a religious exemption instead of medical.” In other words, people are concerned about their reputation, about their children’s marriage prospects, and are getting religious exemptions to cover whatever booboo the child has that might prevent them, medically, from getting vaccinated.

3. Still, reluctance to vaccinate *is* a problem. This is where the anti-vaccine issue comes in. From reading the reports of doctors and administrators, I’ve seen that they are dealing with a new wave of parents who are afraid of vaccines. No, it’s not a whole community of fanatics rejecting modern science, but it seems to be a real trend. Kornbluh from UTA says that “two or three years ago, we had less than 1% [exemptions from vaccines]. I blame the rise on misinformation; it’s been a terrible influence. For example, a popular hotline listened to by many women, has been the source of a lot of negative and unsubstantiated claims about vaccines.”

4. A recent influx of anti-vaccine scaremongering: Dr. Werzberger says that “twenty-five years ago, there was no such thing as not giving vaccines on time! Except if someone had a cold.” Another doctor said that people are becoming more hands on. They are more invested, they question authority. They don’t just do as the doctor says. They’d come to the doctor and say “I’ve done my research” even if the research is from shabby sources.

5. Refusing vaccines on the basis of “health”, not religion. Per Dr. Werzberger, “Even in an insular culture, like Kiryas Yoel, the secular way of thinking will influence the community… Mothers think that vaccines negatively affect the immune system.” The irony here is terrific. Because of the small-town, insular ways of the Hasidic community, it is easier for babba maysos to spread. Yet of all the babba maysos to spread, it’s the ones from the secular nuts.

6. Why the Hasidic community is more susceptible to fears of vaccines: the takeaway is that a few things come together to make vaccine-refusal catch on. First, vaccines have been so successful, people forget how terrible the illness it curtails is, while they hear all about its side effects. Almost as if the crisis is over, no need for precautions anymore. Hasidim are not doctors or nurses, so misinformation is ripe for the spreading. The small-town feel means this yenta tells this friend and that person and it’s all confirmed: the cat was a spirit carrying news about the cancer the neighbor’s sister had because of vaccines. There is also that a few fringe people were peddling stories that scared people, and the community didn’t organize to respond to them and squelch people’s fears. You see this with other issues too — the proactive education isn’t there vis a vis health until things get really rough. My hunch is that this is why the lead problem affects the Hasidic community too; because the information about the dangers of lead paint and such doesn’t reach people. It’s clear from this publication that there is finally an effort to take mother’s fears seriously and explain to them what the issues are. There is also the aspect that, according to the administrator of V’Yoel Moshe school “Anti-vaccine movements catch up with these very, very overwhelmed mothers and provide an excuse not to vaccinate.” The V’Yoel Moshe school claims they had success by coordinating vaccines with the doctors office. In other words, when you have a lot on your plate it can be the path of least resistance.

7. It’s obviously not all anti-vaccines. Even though this magazine is primarily geared towards educating and encouraging those fearful of vaccines, it touches on some other issues that might make the Hasidic community vulnerable to an outbreak. This school principal writes that “we are so bonded together, so many kids in one classroom, so many bochurim sitting across from each other in Bais Medrash, we must be more vigilant than anyone else. He also writes that “since we are a frum mosad (a religious school), we must let all children in.” I won’t go into the hypocrisy of this rule being cut off for those who don’t comply with religious requirements… The point is that the children who are not vaccinated are not homeschooled, they are around to pass contagions around. The doctors offices also (most of them) will accept patients even if they refuse to vaccinate. So between those who can’t vaccinate and those who won’t and those too young, the risks are surely higher in the Hasidic community.

I like the publication. I like it a lot. Instead of screaming “anti-vaxxers!” and pointing fingers and making it as if anyone who has ever questioned vaccines is the enemy of vaccines, it takes Hasidic mothers seriously. It believes that education and community coordination can solve the problem. Which — I think it will. The question is if the community will learn for next time to be proactive, before the quacks and witch doctors return to town and again set up voodoo shop and sell their snake all to every woman’s deepest anxieties.

A year or two ago, New York City reported that the Hasidic community in Williamsburg had the highest rates of lead poisoning in the city. I heard it on WNYC radio, during a very early morning drive to my 5:30 spin class, back when I lived in the suburbs and did such suburban stuff as be on the open road at 5am. I thought to myself then, hm, I wonder why Hasidim were most affected. I’ll find out later. But I never did find out. Not for lack of trying. I did look at all the news stories published in mainstream sources, I asked anyone and everyone in the Hasidic community but got shrugs and ‘dunnos’, I even bought the Yiddish newspapers regularly and read the reports there too – but no one explained why the Hasidic community had higher rates of lead poisoning than other demographics.

Now there is a new story of a public health issue concerning disproportionately the Hasidic community. And again the obvious question of why is on my mind. It’s about the measles outbreak, of course. 153 cases have been reported in Rockland County, where County Executive Ed Day declared a countywide emergency. There have been cases in Hasidic Williamsburg too, where medical facilities too are on high alert.

A lot of things might cause a virus that was previously considered extinct to spread, but I don’t know what specific issues added up to make it happen here. The problem is that journalists covering this story are taking the easy route of just saying “well, must be because of that vicious anti-vaxxerism”. The Times and other NYC beat journalists find the few misfits in the community who are into health mishigasen and alternative healing and who don’t vaccinate, and they tell readers about it. The New Yorker interviews a nurse who meets with these vaccine-fearful women and explains the science to them, without asking how many women really are vaccine-fearful (although that nurse is laudable and seems lovely and to have a big, great heart) And the comments sections on reddit have it all diagnosed most succinctly: “Their religious refusal to vaccinate is putting me at risk.”

Wait. Why does the public walk away with the impression that Hasidim are against vaccines on religious grounds? Why are people acting like this is a religious rights issue?

In case it needs to be said again, let me be clear: Hasidism as a culture is pro-vaccines. They are not with vaccines the way that Jehova’s Witness is with blood transfusion. In fact, Hasidic culture as a whole loves modern medicine. That’s a whole other fascinating contradiction, but that’s the reality. Which mother of eight has time to deal with kids getting sick left and right? You give vaccines, thank goodness! There might be some or many misfits within the community who go their own way. That would be analogous to the Hasidim who have smartphones even though you are officially not really supposed to have one. So the individuals who are anti-vaccine are actually going against the cultural grain. And how many such people are there? How significant is their influence on the measles epidemic?

We have no idea. You won’t find the answers from reading the news.

The Times reported that the original carrier of the virus came from Israel and was unvaccinated, and that the virus spread to unvaccinated kids. That’s all the data you get. Based on that alone, they assume that this is mostly an anti-vaxxer story.

But there could be a number of other reasons for a child to be unvaccinated. Maybe because the child is too young for the vaccine. Or because the parents were neglectful of it. Or because the school the child went to didn’t remind the parents. Or because when a virus is considered extinct, people get sloppy. Maybe people get sloppy because they hear rumors about it being scary. If so, is that the same as anti-vaxxers? If the Hasidic community can be brought up to speed on vaccines with a bit of intervention, is it fair to put them in the same category as obstinate believers of fringe theories?

It is reasonable to guess that at the time of the outbreak, many kids were unvaccinated. But that doesn’t tell us why. If I tell you that I didn’t get my flu vaccine this year (I didn’t), would you automatically assume that it is because I am afraid that vaccines cause autism and I’m an anti-vaxxer now? Or would you ask the question journalists should be asking: Why didn’t you? How could we ensure you get it? What can we learn from this?

(the answer is because, em, um, I was neglectful and my doctor was out of it and CVS said I should come back the next day and… it didn’t happen.)

Even before the measles story was so big, I called my son’s old medical center in New Square for his records, and was surprised that the automated system now announced: “If you would like to find out if your kids are up to date on their MMR, press X”. Clearly, there is an element of just sloppiness here. What else caused the virus to spread? Was it only the unvaccinated? Was it the age the vaccine needs to be given? Is there something about how the vaccine is given that we can take away here?

Instead of answering any of this, secular anti-vaxxers have been conflated with the Hasidic community. Which causes everyone on the outside to gleefully finger-point and blame the Hasidic community for the outbreak. In the story in the Yiddish paper, one Hasidic family recounts being told that they are Jewish and therefore must have the measles. Ugh, that’s a lot of ignorance that we are allowing people to believe.

Why does it bother me so much? Because this bothers me in a very deep way: incuriosity about the other. Making the “OTHER” into a monster of its member’s worst. Making assumptions in place of investigating facts. Mistaking a small minor part of a story as the WHOLE story. I get so upset when people do that, because it’s de ja vu for me. That is what Hasidim do. I always had a hard time with it, and I encountered it. A lot

Once on a tour, some Hasidic man, clearly a douchebag, stopped me and started to yell at me and my group that “she hates us, don’t believe her, it’s all BS.” I was dumbfounded by how upset this person was based on what he made up in his own mind about what was happening on my tour. I asked him “how do you know what the tour is about?” but he was sure he knew. He was making assumptions, and then building towers of logic and debate on them. But the underlying assumptions are laughably pulled out of his own head, based on information he has and his logic. But I feel like for a Hasidic person, this is forgivable. Because Hasidim are raised in a pre-enlightenment worldview where you don’t have the resources or education in checking a premise.

In the secular world, I see the exact same tendency all the time. But not out of a poor capacity for evaluating the evidence. It comes out of the fast, intensive news cycle. Where journalists need to keep churning out stories. If you need to report on the measles outbreak in a day, you don’t have time for finding out why; you just talk to this attention loving clown and that (Gestetner, I’m looking at ou), get your quotes, and voila, the story is filed. Filed, but not told.

I ran into this ceremony on my way out of one of my Sunday tours. It was held in front of the Puppa Boy’s School, where our tour often passes. This was an inauguration of a newly completed Torah, the ceremony called Hachnuses Sefer Torah. Everyone looked all dressed up and festive!

This was or first ever food tour on Chanukah and we had a wonderful time! We learned how to play dreidle and we tasted various of the newest iterations of donuts. The dairy donuts are now all the rage, and we tried some that sell for $8.50 a piece! They’re filled with delicious cream-cheesy fillings and come in a mad collection of varieties. It’s a lot of fun for me to keep up with the food trends in Williamsburg. The creative energy that goes into the food – incredible!

Photos credit: Rossana Casale Garner.

 

 

The question reminds me of an old cartoon of mine:

But don’t be too hard on yourself if you assume that a Kosher phone is something like this. I’m sure that’s something too.

But in contemporary Hasidic parlance, Kosher phones are phones that have been restricted in some ways, so as to ensure that they don’t provide access to various apps and sites that are considered problematic. Some kosher phones might be modified smartphones, like the following: This smartphone has Waze, camera, calendar, weather and the “Seal of Trust”. Although it is very restricted, with few apps and no browser, it is still a rather advanced phone.

But the kosher phone I have is one of the most restrictive phones. It is a flip-phone. The original device is the LG VX5500, which was released in 2008. It comes with talk, text, camera and, I believe, a browser. The unmodified phone can be ought on ebay for $20.

**

Here is the kosher version. It’s listed on Venishmartem, a website for recommending internet solutions for Orthodox Jews, as follows:

Some of the features:

1. It has a symbol of kosher supervision.

2. The symbol sits on the camera eye, so the camera is disabled.

3. Where the messaging features should be, we have various shapes.

If you click on them, you are told they are disabled:

(here is the unedited version of the LG’s messaging feature)

4. Whatever features used to be at the first tab, it’s now named “colors” and various color options are available. If you click blue, you have several options of blue. Then you hit the dead-end again.

In other words, the only features that work are phones, contacts and settings. As simple as a flip-phone can get.

Naturally, the resistance to text and internet spurned a whole industry in phone news and phone information. I remember as a child we used to call “800-tellme”, before that was discontinued and replaced by the web. Within the Hasidic community, a thriving industry of hotlines cropped up, and serve as ways to get instant information without having internet access. I am guessing that this is why we see so many people walk around with their phones on their ears. Most of them aren’t even talking. They are probably just doing the equivalent of the subway full of riders with their eyes glued to their screens. Here it is ears.